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Parent Category: Research
Category: Tryptasemia & Co-Morbidities

June 4, 2021

June is Lipedema Awareness month. On June 1, I recorded a video for Lipooedema Friends International--not about the disease, but about something that brings me joy in life, writing. Now, I'll share a few things that are challenging about lipedema.

Screenshot 20210301 120559March 7, 2021

Yesterday was World Lymphedema Day. And March is Lymphedema Awareness Month. Our first exposure to lipedema came at The Mastocytosis Society's 2019 Annual Conference. I've had a friend with lymphedema (also spelled lymphoedema), secondary to cancer, for more than a decade, but I had no idea I could be experiencing the same thing. 

 
A few points from that and other conferences:
Lipedema causes me daily pain, despite medication. It also takes up an hour of each day, while I use a machine for lymphatic decongestion. I also practice swimming, recumbent biking, rebounding on a mini-trampoline, and wearing graduated compression.
 
Two Facebook groups I've enjoyed are
Lipedema Fitness and
Lipedema Friends International