Tryptasemia & Co-Morbidities
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
A HATS co-morbidity; see also: Thriving w/ Lipedema🌸
I was introduced to Lymphedema and Lipedema at a HATS-related conference. How amazing, that there are others shaped just like me...normal size hands & feet, oversized hips, abdomen and thighs. Let's help raise awareness!
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
This article is paired up with another, I have a cough but it's not COVID. I've written this follow-up, because now the cough finally was COVID.
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
Today the doctor who applied for the ICD-10 code announced that is it that it is official!
D89.44
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
As mentioned in a previous article, vaccines can be tough on people with Hereditary Alpha Tryptasemia Syndrome. The Moderna booster for COVID-19 was no exception. Bottom line: 2 sleepless nights, and the day between them was not too bad.
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
Florida has it all... fabulous beaches, fun cities, copious freshwater rivers & streams...and mosquitoes. So when articles about rendering mosquitoes sterile appear, that may seem like a perfect solution. Those of us with Hereditary Alpha Tryptasemia syndrome (HATS), are particularly susceptible to insect bites, especially if they come from mosquitoes carrying Dengue Fever. But there are long-term ecological impacts to fragile ecosystems that must be considered, as well.
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
2022, November
We've updated the Faces of Tryptasemia HATS page with Nicole's new video.
2021, December
Per the Mast Cell Disease Society's December 31 email, the nonprofit has, among many other contributions,
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
These are stories from individuals who have been confirmed to have Hereditary Alpha Tryptasemia Syndrome, or HATS. If you are confirmed to have HATS and interested to share your story, please send a message on Contact Us.
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
Despite my lengthy set of physical challenges, every doctor I have agrees that I should exercise. Biking could be another source of injuries for me, were it not for my recumbent bike.
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
The following is a range of studies that have been beneficial for our families' Hereditary Alpha Tryptasemia Syndrome (HATS), co-morbidities, and other possible hereditary disorders.
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
Vacationing-while-having-HATS (Hereditary alpha Tryptasemia syndrome) is not for the faint of heart. The pitfalls can cause a challenge both during the vacation and beyond. It might even tempt one to never leave home.
Perfect strangers have been roped into helping me through dysautonomia in an airport, getting me settled after a fall, helping us get to a hospital in a foreign country for an allergic reaction, etc.
However, I love to travel—so thankfully, we’ve picked up a tip or 20 through the years.
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
July 22, 2021
Go check out Thriving with Lipedema. This blog describes living with lipedema, from a patient who also has HATS.
June 4, 2021
June is Lipedema Awareness month.
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