Tryptasemia & Co-Morbidities

 A HATS co-morbidity; see also: Thriving w/ Lipedema🌸

airos blog 3 03 20222I was introduced to Lymphedema and Lipedema at a HATS-related conference. How amazing, that there are others shaped just like me...normal size hands & feet, oversized hips, abdomen and thighs. Let's help raise awareness!

This article is paired up with another, I have a cough but it's not COVID. I've written this follow-up, because now the cough finally was COVID.

For years, I've had a non-productive, dry cough (described in the article above).

In January/February 2023, I've had a productive cough. Multiple visits to doctors determined that it was an allergic cough. It is unclear what I am allergic to, given that every blood test comes back negative, including penicillin (with which I have had reactions, as have my kids). 

In March 2023, I had my first case of COVID-19. I'm grateful that I beat the odds as long as I did, because I was able to get an appointment very quickly and, ultimately, to start Paxlovid™️ immediately after getting a positive test.

How was the cough different, contrasting January/February to March?

Not at all.

I woke up in the middle of the night with a headache; headaches and migraines are not rare for me, yet it was paired up with the following:

  1. The headache awaking me
  2. The afore-mentioned productive cough
  3. Another member of my household being positive

As it happens, I missed just 1 day of work, because I was able to work virtually.

It should be noted, however, that I became ill within 10 days, with a different gastrointestinal sickness.

See also:

Tryptasemia and COVID-19


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Today the doctor who applied for the ICD-10 code announced that is it that it is official!


PXL 20220102 214212000As mentioned in a previous article, vaccines can be tough on people with Hereditary Alpha Tryptasemia Syndrome. The Moderna booster for COVID-19 was no exception. Bottom line: 2 sleepless nights, and the day between them was not too bad.

IMG 20200924 2100542Florida has it all... fabulous beaches, fun cities, copious freshwater rivers & streams...and mosquitoes. So when articles about rendering mosquitoes sterile appear, that may seem like a perfect solution. Those of us with Hereditary Alpha Tryptasemia syndrome (HATS), are particularly susceptible to insect bites, especially if they come from mosquitoes carrying Dengue Fever. But there are long-term ecological impacts to fragile ecosystems that must be considered, as well.

2022, November

We've updated the Faces of Tryptasemia HATS page with Nicole's new video.

2021, December

Per the Mast Cell Disease Society's December 31 email, the nonprofit has, among many other contributions, 

These are stories from individuals who have been confirmed to have Hereditary Alpha Tryptasemia Syndrome, or HATS. If you are confirmed to have HATS and interested to share your story, please send a message on Contact Us.

PXL 20210828 181707828Despite my lengthy set of physical challenges, every doctor I have agrees that I should exercise. Biking could be another source of injuries for me, were it not for my recumbent bike.

The following is a range of studies that have been beneficial for our families' Hereditary Alpha Tryptasemia Syndrome (HATS), co-morbidities, and other possible hereditary disorders.

PXL 20210728 175148894PORTRAITVacationing-while-having-HATS (Hereditary alpha Tryptasemia syndrome) is not for the faint of heart. The pitfalls can cause a challenge both during the vacation and beyond. It might even tempt one to never leave home.

Perfect strangers have been roped into helping me through dysautonomia in an airport, getting me settled after a fall, helping us get to a hospital in a foreign country for an allergic reaction, etc.

However, I love to travel—so thankfully, we’ve picked up a tip or 20 through the years.

July 22, 2021

Go check out Thriving with Lipedema. This blog describes living with lipedema, from a patient who also has HATS.

June 4, 2021

June is Lipedema Awareness month.